Our work

We currently run a wide range of work programmes across Greater Manchester including the ones listed below.


Mild Cognitive Impairment

Mild Cognitive Impairment (MCI) describes issues with memory or thinking that aren’t as severe as dementia but may develop into dementia later. We’re working with healthcare services across Greater Manchester to support early diagnosis of MCI and ensure everybody receives the care they need.

Greater Moments (formerly the lived experience barometer)

People living with dementia and those who care for them are at the heart of all our work. They are invited to all of our meetings, events and workshops. Our partners, tide, together  in dementia everyday, are charged with ensuring the real experience of carers underpins every action we take.

In partnership with Social Sense, we’re developing a tool to test, measure and capture data on the real experience of people living with dementia and those who care for them. Operating in real-time the data will be used to both personalise their care and inform our future work.

Post-Diagnostic Support

Working with all ten localities across Greater Manchester we’re seeking to improve the support and services which people living with dementia and their carers receive after diagnosis. There are two key parts to our work in this area:

  • The Greater Manchester Care Pathway – which sets out the support and services that people should receive, wherever they live.
  • The Greater Manchester Wellbeing Plan – which promotes personalised planning conversations with people living with dementia about their needs and wants.

Under-served populations

Dementia care should be equal across all Greater Manchester. We’re working to ensure everybody living in our region has the same access and quality of support – from obtaining an initial diagnosis through to the full range of post-diagnostic care and support.

Dementia-Friendly Transport

Together with the Greater Manchester Combined Authority (GMCA) and Transport for Greater Manchester we’re making our region’s transport more dementia-friendly. From training for transport staff, to simplifying schemes such as travel reimbursement, and coordinating hospital appointment transport.

End of life care

Working together with Greater Manchester Hospices we are developing training on end of life care of those with dementia. This will be targeted at Primary Care Networks in the first instance to support their delivery of the Enhanced Health in Care Homes programme from October 2020. If you are part of a Primary Care Network and would like the opportunity for your multidisciplinary team to attend this free webinar training, please contact lyndsey.kavanagh@nhs.net.

Delirium

During COVID-19, delirium has been particularly prevalent. To that end, we have expedited the testing of the Greater Manchester Community Delirium Toolkit (link to resources). This toolkit is designed for multidisciplinary community teams to help identify and manage delirium appropriately. If your team would like to test out the toolkit with support from Dementia United, please contact emma.smith96@nhs.net.

Young Onset and Rarer Forms

Those with young onset and rare dementia often have to wait longer to receive a diagnosis and when they do, support available is often not age or symptom appropriate. Dementia United will be hosting a webinar training session on diagnosis of young onset and rare dementia as well as promoting the use of a Young Dementia UK resource that supports dementia advisers to have age appropriate conversations. Also watch out for our leaflet that shows how personal budgets can be particularly beneficial for personalised support of those those living with young onset and rare dementia, as well as the Pennine Care films on Frontotemporal Dementia.

Innovation

Health Innovation Manchester is working with academia, the healthcare system, commissioners and providers within Greater Manchester to consider the future possibilities of prevention, via the development of an Early Dementia Diagnostic framework for Greater Manchester working with the Dementia Industry Group, which is a life sciences industry collaborative group supporting the UK to lead in the field of dementia treatment and research.

The vision is to improve outcomes in dementia by ensuring optimal access and uptake of innovative technologies and treatments for eligible patients as well as ensuring the health and care system is geared to provide the best support for people living with dementia by establishing an early detection and diagnostic framework for Greater Manchester.

Research

Help shape the future of dementia care and support.

During these challenging times, as we all try to adapt to a new normal, keeping ourselves and our loved ones safe is at the top of everyone’s priority list, especially if yourself or a loved one is living with dementia. The challenges social distancing bring for those with a dementia are wide-reaching and as varied as the disease itself; that’s why it’s so important that we hear from patients and carers in this challenging time to help us understand their needs and concerns.

Dementia and COVID research is adapting, offering patients new, safe, ways to ensure their voices are heard and enabling researchers to understand individual concerns about the impact COVID-19 has had on their lives. For those who have the capacity and time, Join Dementia Research offers access to a number of studies which can be completed online or over the phone, you can find out more by calling the Alzheimer’s society on: 0333 150 3456, Alzheimer’s Research UK on: 0300 111 5 111 or visiting their website: www.joindementiaresearch.nihr.ac.uk

get in touch

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We’ll know we have a 21st century NHS when it supports people with dementia as well as it does people with cancer.

Andy Burnham, Mayor of Greater Manchester

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The more we got involved, well it became more and more interesting and to actually realise that you’re being listened to, really in a meaningful way and we’re now seeing that impact coming back.

Liz and Mike are involved in several workstreams of Dementia United and Liz is a member of the Dementia Expert Reference Group