Capturing the experience of people with dementia

Posted October 2019

People living with dementia and those who care for them are at the heart of all our work. They are invited to all of our meetings, events and workshops. Our partners, tide, together in dementia everyday, are charged with ensuring the real experience of carers underpins every action we take.  In partnership with Social Sense, we’re developing a tool to test, measure and capture data on the real experience of people living with dementia and those who care for them. Operating in real-time the data will be used to both personalise their care and inform our future work.

Over a 2-month period between August and September 2019, Social Sense and Hitch conducted an online survey to capture the opinions and feedback of those living with dementia. These responses, in addition to ongoing face to face engagement, will ensure the successful development of the ‘lived experience barometer’ that meets the needs of individuals affected by dementia in Greater Manchester. Lived Experience Barometer Survey results