Resources

Guides, strategies and research to help manage dementia. For informal carers, NHS workers and people living with dementia themselves.  Click on show more to access the full range of resources.

You can also find a range of resources on our Dementia Care Pathway. We worked with people living with dementia, their care partners, and professionals in Greater Manchester to find out what matters to them and to use this information to co-produce a set of 75 dementia quality standards.

 

Dementia United plans

 

Dementia and Brain Health Delivery Plan 2023 to 2025

Dementia and Brain Health Delivery Plan 2023 to 2025

The purpose of this plan is to work in co-production with partners across Greater Manchester to deliver meaningful reform and quality improvement.

Dementia United Greater Manchester Standards 02092016 [PDF]

Dementia United Greater Manchester Standards 02092016 [PDF] [PDF]

This set of standards is intended as a tool for making progress on Dementia United pledges and offer GM an opportunity to collectively, as well as locally, make improvements for people with dementia and their carers.

Dementia United Delirium and Hydration Resources

 

Delirium and Hydration Awareness Poster for staff

Delirium and Hydration Awareness Poster for staff [PDF]

We’ve created public and staff facing posters and leaflets to encourage hydration and educate people on the link between dehydration and delirium.

Delirium and Hydration Awareness Poster public facing

Delirium and Hydration Awareness Poster public facing [PDF]

We’ve created public and staff facing posters and leaflets to encourage hydration and educate people on the link between dehydration and delirium.

Delirium and Hydration Awareness Leaflet public facing

Delirium and Hydration Awareness Leaflet public facing [PDF]

We’ve created public and staff facing posters and leaflets to encourage hydration and educate people on the link between dehydration and delirium.

Dementia United delirium leaflets

 

Greater Manchester Public Facing Delirium Leaflet: Longer Version

Greater Manchester Public Facing Delirium Leaflet: Longer Version [PDF]

This leaflet provides information on how to recognise delirium and what to do about it

Greater Manchester Public Facing Delirium Leaflet: Shorter Version

Greater Manchester Public Facing Delirium Leaflet: Shorter Version [PDF]

This leaflet provides information on how to recognise delirium and what to do about it

Greater Manchester Public Facing Delirium Leaflet: Translated versions

Greater Manchester Public Facing Delirium Leaflet: Translated versions

These are available in sixteen languages: audio, print and video.

Dementia United Delirium Toolkits

 

These two Greater Manchester evidence-based toolkits have been developed by Dementia United with partners and stakeholders, including people with lived experience.

Greater Manchester Community Delirium Toolkit

Greater Manchester Community Delirium Toolkit [PDF]

This toolkit is based on national evidence and includes resources for both clinicians and people with delirium and their families.

Greater Manchester Hospital Delirium Toolkit

Greater Manchester Hospital Delirium Toolkit [PDF]

This toolkit is based on national evidence and includes resources for both clinicians and people with delirium and their families.

Delirium awareness raising and training resources

Delirium awareness raising and training resources [PDF]

Includes resources useful for anyone (people living with dementia, family members, carers, and health and social care staff). There are also resources catered specifically towards hospital staff and staff working in the community.

Hospital Delirium Toolkit

Hospital Delirium Toolkit

This toolkit is based on national evidence and includes resources for both clinicians and people with delirium and their families.

Dementia United delirium resources

 

Raising awareness for support staff and family carers.

Raising awareness for support staff and family carers. [PDF]

This document provides resources for support staff, family members and carers.

Resources for practitioners, managers and qualified staff

Resources for practitioners, managers and qualified staff [PDF]

This document contains a range of resources and toolkits.

Greater Manchester delirium approach and seven key standards

Greater Manchester delirium approach and seven key standards [PDF]

We recommend this as a person-centred pathway for those susceptible to delirium.

Dementia United Education and Training

 

Dementia United collated education and training opportunities

Dementia United collated education and training opportunities [PDF]

Palliative and end of Life Care

 

UCL Rules of Thumb Guide for End of Life Care for people with Dementia

UCL Rules of Thumb Guide for End of Life Care for people with Dementia [PDF]

This guide is for any healthcare professionals providing care and support for people with dementia at the end of life.

Dementia United's Greater Manchester syllabus for training on end of life care of those with dementia

Dementia United's Greater Manchester syllabus for training on end of life care of those with dementia [PDF]

This syllabus was agreed with input from health and care professionals and carers, using evidence based good practice literature.

Mild Cognitive Impairment (MCI)

 

Mild Cognitive Impairment (MCI) describes problems with mental abilities such as memory or thinking that can develop into dementia if untreated.

Alzheimer's Society - Mild cognitive impairment

Alzheimer's Society - Mild cognitive impairment

This page on the Alzheimer's Society's website explains what mild cognitive impairment (MCI) is and tells you about some of the main symptoms.

Information for patients diagnosed with Mild Cognitive Impairment in Greater Manchester

Information for patients diagnosed with Mild Cognitive Impairment in Greater Manchester [PDF]

You have been diagnosed with Mild Cognitive Impairment. What happens next? Download this leaflet for more information.

Mild Cognitive Impairment (MCI) - A Guide for Professionals

Watch this film to find out more about Mild Cognitive Impairment (MCI). This film supports the work of Dementia United and we encourage you to use this to help raise awareness of joint working around MCI amongst health care, social care and the voluntary sector.

Mild Cognitive Impairment (MCI) - A Guide for the Public

Watch this film to hear from people living with MCI and professionals about why it is important to identify MCI - funded by the Greater Manchester and Eastern Cheshire Strategic Clinical Network and created in partnership with Age UK Trafford.

Greater Manchester Approach to Mild Cognitive Impairment

Greater Manchester Approach to Mild Cognitive Impairment [PDF]

In the absence of specific NICE guidance on Mild Cognitive Impairment (MCI), Dementia United co-produced this document to recommend a pathway for patients once diagnosed with MCI. This is a new and emerging area, energised by exciting evidence demonstrating impact in the prevention or delay of dementia by adopting lifestyle changes and the promise of new treatments which may prevent or delay dementia in the future.

National Resources for people living with dementia and their carers

 

Living with Dementia Toolkit - downloadable guide

Living with Dementia Toolkit - downloadable guide

The guide is available in English and in Welsh. It introduces the toolkit and the resources available.

Dementia Tip Share

Dementia Tip Share

A Treasure Chest of Tips: to help you to keep living as well as you can. From people with dementia, for people with dementia

Dementia diaries

Dementia diaries

A platform for people living with dementia to record their thoughts.

After Diagnosis of Dementia: what to expect from health and care services

After Diagnosis of Dementia: what to expect from health and care services

Download this guide to the support people should get from local services in England if they or someone they know have been diagnosed with dementia.

NATIONAL RESOURCES FOR HEALTH AND CARE PROFESSIONALS WORKING IN THE FIELD OF DEMENTIA

 

Connecting People, Connecting Support

Connecting People, Connecting Support

An online space where people with dementia, family members and care staff can access post-diagnostic materials informed by their research programme

National Dementia Action Alliance Dementia Statements.pdf

National Dementia Action Alliance Dementia Statements.pdf [PDF]

The new Dementia Statements reflect the things people with dementia say are essential to their quality of life

Each day is different: An introduction to the care and support of people with dementia

Each day is different: An introduction to the care and support of people with dementia

This page on the Alzheimer's Society's website provides someone starting out in dementia care with an introduction to what they might expect in the first few weeks.

Resources for GPs

Resources for GPs

This link will take you to the Alzheimer's Society website which provides resources and information about how to support people affected by dementia.

How to help people with dementia: A guide for customer-facing staff

How to help people with dementia: A guide for customer-facing staff [PDF]

Download this publication to read how small actions can make a big difference when you are serving customers with dementia.

National Delirium Resources

 

Delirium Awareness Video #icanpreventdelirium

Produced by Tees, Esk and Wear Valleys NHS Foundation Trust

Risk reduction and management of delirium

Risk reduction and management of delirium

This guideline provides recommendations based on current evidence for best practice in the detection, assessment, treatment and follow up of adults with delirium, as well as reducing the risk of delirium.

Delirium digital pathway at Salford Royal

Watch this video to see how Salford Royal have created a new digital pathway which is improving the way they diagnose and treat patients with delirium.

Young Onset and Rarer Forms of Dementia

 

A Greater Manchester Approach to Young Onset and Rare Dementia

A Greater Manchester Approach to Young Onset and Rare Dementia [PDF]

This document aas been created following a 2 year consultation and information exchange with a task and finish group, locality multi-disciplinary teams and experts at the Cerebral Function Unit (CFU) in Salford.

Cerebral Function Unit at Salford Royal

Cerebral Function Unit at Salford Royal

The Cerebral Function Unit is a regional clinical service for the investigation, diagnosis and care of early-onset and rare neurodegenerative dementias.

Young Dementia Network

Young Dementia Network

A community of people living with young onset dementia, their family and friends, as well as professionals who work in the field of health and social care and voluntary sector

Decision-making guide for GPs - Young Dementia Network

Decision-making guide for GPs - Young Dementia Network

The Young Dementia Network has developed a Decision-making guide for GPs, endorsed by the Royal College of GPs, to aid the recognition of the symptoms of dementia in younger people

Young Onset Dementia

Young Onset Dementia

Section on the Dementia UK website

Pennine Care Video 1 - An introduction to frontotemporal dementia (FTD)

Pennine Care Video 1 - An introduction to frontotemporal dementia (FTD)

Pennine Care Older People's Mental Health Team in Stockport have co-produced 3 videos to help raise awareness amongst professionals and the public to better recognise frontotemporal dementia (FTD) – especially GPs who may be the first port of call when someone is concerned about their symptoms. The videos are also an excellent resource for formal and informal carers to understand what it is like to live with and care for someone with FTD with practical tips and advice.

Pennine Care Video 2 - Getting Help and Support with Frontotemporal Dementia (FTD)

Pennine Care Video 2 - Getting Help and Support with Frontotemporal Dementia (FTD)

Pennine Care Older People's Mental Health Team in Stockport have co-produced 3 videos to help raise awareness amongst professionals and the public to better recognise frontotemporal dementia (FTD) – especially GPs who may be the first port of call when someone is concerned about their symptoms. The videos are also an excellent resource for formal and informal carers to understand what it is like to live with and care for someone with FTD with practical tips and advice.

Pennine Care Video 3 - Living with Changes in Behaviour in Frontotemporal Dementia (FTD)

Pennine Care Video 3 - Living with Changes in Behaviour in Frontotemporal Dementia (FTD)

Pennine Care Older People's Mental Health Team in Stockport have co-produced 3 videos to help raise awareness amongst professionals and the public to better recognise frontotemporal dementia (FTD) – especially GPs who may be the first port of call when someone is concerned about their symptoms. The videos are also an excellent resource for formal and informal carers to understand what it is like to live with and care for someone with FTD with practical tips and advice.

Film: Speech and Language Therapy for those with Primary Progressive Aphasia (PPA)

Through the work of Dementia United, it was identified there was a need for more public information about rarer dementias including Primary Progressive Aphasia (PPA). It is hoped that further information may help people with PPA better access services. Together with Pennine Care NHS Trust, this video was created for people who have recently had a diagnosis of PPA and the people that care for them. It provides a summary of the support you may access from Speech and Language Therapy

PARTNER ORGANISATIONS

mebers icon

The Alzheimers Society

VISIT WEBSITE
mebers icon

Greater Manchester Health and Social Care Parternship

VISIT WEBSITE
mebers icon

Health Innovation Manchester

VISIT WEBSITE
mebers icon

Greater Manchester Combined Authority

VISIT WEBSITE
mebers icon

Manchester Camerata

VISIT WEBSITE
mebers icon

Social Sense

VISIT WEBSITE
mebers icon

University of Manchester

VISIT WEBSITE
mebers icon

Transport for Greater Manchester

VISIT WEBSITE
mebers icon

Dementia UK

VISIT WEBSITE
mebers icon

NHS England - Dementia

VISIT WEBSITE
mebers icon

Salford Institute for Dementia

VISIT WEBSITE
mebers icon

Voluntary Community and Social Enterprise

mebers icon

Primary Care

mebers icon

Greater Manchester Healthwatch's