Dementia wellbeing in the COVID-19 pandemic NHS England

Primarily for clinicians working with people with dementia, but can also be used by carers and people with dementia.

Through the eyes of dementia - English (no subtitles)

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - English long version with subtitles

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - English short version with subtitles

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - BSL longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - BSL short version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Bengali longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Bengali short version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Gujarati longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Gujarati short version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Punjabi longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Punjabi short version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Urdu longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Urdu short version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Hindi longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Hindi short version

Created by Manchester Health and Care Commissioning

Understanding dementia [PDF]

Leaflet produced by Manchester Health and Care Commissioning

Living with dementia [PDF]

Leaflet produced by Manchester Health and Care Commissioning

Making your place of worship Dementia Friendly - mosque [PDF]

Leaflet produced by Manchester Health and Care Commissioning

Making your place of worship Dementia Friendly - temple [PDF]

Leaflet produced by Manchester Health and Care Commissioning

How to reduce your risk of dementia

The Alzheimer’s Society have a wide range of resources available on their website on how to reduce your risk of dementia

After Diagnosis of Dementia: what to expect from health and care services

Download this guide to the support people should get from local services in England if they or someone they know have been diagnosed with dementia.

Dementia United Greater Manchester Standards 02092016 [PDF]

This set of standards is intended as a tool for making progress on Dementia United pledges and offer GM an opportunity to collectively, as well as locally, make improvements for people with dementia and their carers.

Dementia United Action Week Celebratory Event Report May 2019 [PDF]

As part of Dementia Action Week, Dementia United held its first celebratory event on Friday 24 May 2019 at the Science and Industry Museum in Manchester.

Pennine Care Video 2 - Getting Help and Support with Frontotemporal Dementia (FTD)

Pennine Care Older People's Mental Health Team in Stockport have co-produced 3 videos to help raise awareness amongst professionals and the public to better recognise frontotemporal dementia (FTD) – especially GPs who may be the first port of call when someone is concerned about their symptoms. The videos are also an excellent resource for formal and informal carers to understand what it is like to live with and care for someone with FTD with practical tips and advice.

Pennine Care Video 3 - Living with Changes in Behaviour in Frontotemporal Dementia (FTD)

Pennine Care Older People's Mental Health Team in Stockport have co-produced 3 videos to help raise awareness amongst professionals and the public to better recognise frontotemporal dementia (FTD) – especially GPs who may be the first port of call when someone is concerned about their symptoms. The videos are also an excellent resource for formal and informal carers to understand what it is like to live with and care for someone with FTD with practical tips and advice.

Film: Speech and Language Therapy for those with Primary Progressive Aphasia (PPA)

Through the work of Dementia United, it was identified there was a need for more public information about rarer dementias including Primary Progressive Aphasia (PPA). It is hoped that further information may help people with PPA better access services. Together with Pennine Care NHS Trust, this video was created for people who have recently had a diagnosis of PPA and the people that care for them. It provides a summary of the support you may access from Speech and Language Therapy

Leaflet: Role of Personal Budgets for those with Young Onset and Rare Dementia [PDF]

General dementia support is often not age or symptom appropriate for those with young onset and rare dementia. Not everyone will be eligible for a personal budget but if you are, it can give you more control on how your support is organised and delivered for your needs. This leaflet provides more info and examples of where people with young onset and rare dementia have used personal budgets successfully.

Cerebral Function Unit at Salford Royal

In Greater Manchester, we are fortunate to have the Cerebral Function Unit (CFU) based at Salford Royal, which specialises in the recognition and diagnosis of young onset and atypical neurodegenerative dementias. They have access to essential investigations (e.g. structural imaging, both CT and MRI, PET scanning and CSF sampling), and genetic testing as recommended in NICE guidelines. The CFU can also tell you about up to date research opportunities. We think it is incredibly important that all Greater Manchester localities know about the CFU so those with young onset and rare dementia have equal access to this specialist service. Follow the link to find out more.

A Greater Manchester Approach to Young Onset and Rare Dementia [PDF]

Special thank you to our Greater Manchester Task and Finish Group who have worked with us to pin down some of the key issues faced by those with young onset and rare dementia and their carers along with some great existing research such as the Angela Project led by Prof Jan Oyebode. This document aims to summarise some of these issues as well as the outputs of our work to date; with recommendations for next steps for Greater Manchester localities.

Awareness raising poster - English [PDF]

Created by Manchester Health and Care Commissioning

Awareness raising poster - Urdu [PDF]

Created by Manchester Health and Care Commissioning

Awareness raising poster - Hindi [PDF]

Created by Manchester Health and Care Commissioning

Awareness raising poster - Gujarati [PDF]

Created by Manchester Health and Care Commissioning

Awareness raising poster - Bengali [PDF]

Created by Manchester Health and Care Commissioning

Understanding dementia [PDF]

Leaflet produced by Manchester Health and Care Commissioning

GP Dementia COVID-19 Guidance v3 [PDF]

This is a quick guide to coping with the complex problems that people living with dementia and their families are facing during COVID-19.

Each day is different: An introduction to the care and support of people with dementia

This page on the Alzheimer's Society's website provides someone starting out in dementia care with an introduction to what they might expect in the first few weeks.

Support and care for people with dementia at home: A guide for homecare workers

This book is available to order from the Alzheimer's Society's website. It gives specialist knowledge on the different aspects of providing dementia care in someone's own home.

Resources for GPs

This link will take you to the Alzheimer's Society website which provides resources and information about how to support people affected by dementia.

How to help people with dementia: A guide for customer-facing staff [PDF]

Download this publication to read how small actions can make a big difference when you are serving customers with dementia.

Delirium digital pathway at Salford Royal

Watch this video to see how Salford Royal have created a new digital pathway which is improving the way they diagnose and treat patients with delirium.

Coronavirus: Managing delirium in confirmed and suspected cases

Older people are at the greatest risk from COVID-19. If infected they may present with or develop a delirium. However, delirium is not exclusive to older people and may well be seen in any patient with severe infection, adult respiratory distress syndrome, and those requiring invasive ventilation on ICU units.

Mild Cognitive Impairment (MCI) - A Guide for the Public

Watch this film to hear from people living with MCI and professionals about why it is important to identify MCI - funded by the Greater Manchester and Eastern Cheshire Strategic Clinical Network and created in partnership with Age UK Trafford.

Greater Manchester Approach to Mild Cognitive Impairment [PDF]

In the absence of specific NICE guidance on Mild Cognitive Impairment (MCI), Dementia United co-produced this document to recommend a pathway for patients once diagnosed with MCI. This is a new and emerging area, energised by exciting evidence demonstrating impact in the prevention or delay of dementia by adopting lifestyle changes and the promise of new treatments which may prevent or delay dementia in the future.