Guidance for managing dementia | GMHSC Dementia United

For people living with dementia and their carers

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Dementia wellbeing in the COVID-19 pandemic NHS England

Primarily for clinicians working with people with dementia, but can also be used by carers and people with dementia.

Through the eyes of dementia - English (no subtitles)

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - English long version with subtitles

Created by Manchester Health and Care Commissioning

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Through the eyes of dementia - English short version with subtitles

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - BSL longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - BSL short version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Bengali longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Bengali short version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Gujarati longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Gujarati short version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Punjabi longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Punjabi short version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Urdu longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Urdu short version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Hindi longer version

Created by Manchester Health and Care Commissioning

Through the eyes of dementia - Hindi short version

Created by Manchester Health and Care Commissioning

Understanding dementia [PDF]

Leaflet produced by Manchester Health and Care Commissioning

Living with dementia [PDF]

Leaflet produced by Manchester Health and Care Commissioning

Making your place of worship Dementia Friendly - mosque [PDF]

Leaflet produced by Manchester Health and Care Commissioning

Making your place of worship Dementia Friendly - temple [PDF]

Leaflet produced by Manchester Health and Care Commissioning

How to reduce your risk of dementia

The Alzheimer’s Society have a wide range of resources available on their website on how to reduce your risk of dementia

After Diagnosis of Dementia: what to expect from health and care services

Download this guide to the support people should get from local services in England if they or someone they know have been diagnosed with dementia.

Dementia United Greater Manchester Standards 02092016 [PDF]

This set of standards is intended as a tool for making progress on Dementia United pledges and offer GM an opportunity to collectively, as well as locally, make improvements for people with dementia and their carers.

Dementia United Action Week Celebratory Event Report May 2019 [PDF]

As part of Dementia Action Week, Dementia United held its first celebratory event on Friday 24 May 2019 at the Science and Industry Museum in Manchester.

Young Onset and Rarer Forms of Dementia

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YoungDementia UK

The dedicated national charity for younger people with dementia and their families.

Rare Dementia Support

Supporting people affected by 6 of the rare dementias, including carers and bereaved carers.

Pennine Care Video 1 - An introduction to frontotemporal dementia (FTD)

Pennine Care Older People's Mental Health Team in Stockport have co-produced 3 videos to help raise awareness amongst professionals and the public to better recognise frontotemporal dementia (FTD) – especially GPs who may be the first port of call when someone is concerned about their symptoms. The videos are also an excellent resource for formal and informal carers to understand what it is like to live with and care for someone with FTD with practical tips and advice.

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Pennine Care Video 2 - Getting Help and Support with Frontotemporal Dementia (FTD)

Pennine Care Older People's Mental Health Team in Stockport have co-produced 3 videos to help raise awareness amongst professionals and the public to better recognise frontotemporal dementia (FTD) – especially GPs who may be the first port of call when someone is concerned about their symptoms. The videos are also an excellent resource for formal and informal carers to understand what it is like to live with and care for someone with FTD with practical tips and advice.

Pennine Care Video 3 - Living with Changes in Behaviour in Frontotemporal Dementia (FTD)

Pennine Care Older People's Mental Health Team in Stockport have co-produced 3 videos to help raise awareness amongst professionals and the public to better recognise frontotemporal dementia (FTD) – especially GPs who may be the first port of call when someone is concerned about their symptoms. The videos are also an excellent resource for formal and informal carers to understand what it is like to live with and care for someone with FTD with practical tips and advice.

FOR HEALTH AND CARE PROFESSIONALS WORKING IN THE FIELD OF DEMENTIA

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Memory Assessment Services Summit Output [PDF]

Dementia United hosted the GM Memory Assessment Services Summit on 13 August 2020 with the goal of discussing the current challenges facing those services during the COVID-19 pandemic and to share best practice.

Memory Assessment Services and post-diagnostic support - the Greater Manchester post-COVID-19 landscape [PDF]

A report on the current (June 2020) situation of Memory Assessment Services in Greater Manchester after changes due to the COVID-19 pandemic.

Awareness raising poster - English [PDF]

Created by Manchester Health and Care Commissioning

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Awareness raising poster - Urdu [PDF]

Created by Manchester Health and Care Commissioning

Awareness raising poster - Hindi [PDF]

Created by Manchester Health and Care Commissioning

Awareness raising poster - Gujarati [PDF]

Created by Manchester Health and Care Commissioning

Awareness raising poster - Bengali [PDF]

Created by Manchester Health and Care Commissioning

Understanding dementia [PDF]

Leaflet produced by Manchester Health and Care Commissioning

GP Dementia COVID-19 Guidance v3 [PDF]

This is a quick guide to coping with the complex problems that people living with dementia and their families are facing during COVID-19.

Each day is different: An introduction to the care and support of people with dementia

This page on the Alzheimer's Society's website provides someone starting out in dementia care with an introduction to what they might expect in the first few weeks.

Support and care for people with dementia at home: A guide for homecare workers

This book is available to order from the Alzheimer's Society's website. It gives specialist knowledge on the different aspects of providing dementia care in someone's own home.

Resources for GPs

This link will take you to the Alzheimer's Society website which provides resources and information about how to support people affected by dementia.

How to help people with dementia: A guide for customer-facing staff [PDF]

Download this publication to read how small actions can make a big difference when you are serving customers with dementia.

Delirium

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Delirium is a serious condition where people have increased confusion, changes in thinking and a reduced attention span. It can be prevented and treated. Support for certain groups of people who are more at risk of developing delirium, can prevent it. It is important to be able to identify delirium and establish the causes, in order to provide treatment and support.

Use of a digital delirium pathway and quality improvement to improve delirium detection in the emergency department and outcomes in an acute hospital [PDF]

Risk reduction and management of delirium

This guideline provides recommendations based on current evidence for best practice in the detection, assessment, treatment and follow up of adults with delirium, as well as reducing the risk of delirium. The guideline applies to all settings: home, long-term care, hospital, and hospice.

Coronavirus: Managing delirium in confirmed and suspected cases

Older people are at the greatest risk from COVID-19. If infected they may present with or develop a delirium. However, delirium is not exclusive to older people and may well be seen in any patient with severe infection, adult respiratory distress syndrome, and those requiring invasive ventilation on ICU units.

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Use of a digital delirium pathway and quality improvement to improve delirium detection in the emergency department and outcomes in an acute hospital

Delirium Awareness Video #icanpreventdelirium

Produced by Tees, Esk and Wear Valleys NHS Foundation Trust

Liz and Mike's story: living with dementia and experiencing a delirium

Delirium and Considerations during the COVID-19 pandemic [PDF]

Slides from a webinar delivered on 24 June 2020.

Delirium - Expression of Interest to test out the Toolkit Form [PDF]

This Expression of Interest form concerns the Greater Manchester Community Delirium Toolkit.

Delirium digital pathway at Salford Royal

Watch this video to see how Salford Royal have created a new digital pathway which is improving the way they diagnose and treat patients with delirium.

Get involved with Dementia United

Liz and Mike are members of the Dementia United Expert Reference Group

At the heart of our work are people with lived experience. Liz and Mike are involved in numerous workstreams and use their experiences and knowledge to help us make informed decisions and improve outcomes.

Patrick – living with dementia and Dementia United Board member.

Patrick talks about living with frontal lobe atrophy and his experiences of working with the team. Patrick’s passionate about more people with lived experience of dementia getting involved in the Dementia United programme of work.

Mild Cognitive Impairment (MCI)

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Mild Cognitive Impairment (MCI) describes problems with mental abilities such as memory or thinking that can develop into dementia if untreated.

Alzheimer's Society - Mild cognitive impairment

This page on the Alzheimer's Society's website explains what mild cognitive impairment (MCI) is and tells you about some of the main symptoms.

Information for patients diagnosed with Mild Cognitive Impairment in Greater Manchester [PDF]

You have been diagnosed with Mild Cognitive Impairment. What happens next? Download this leaflet for more information.

Mild Cognitive Impairment (MCI) - A Guide for Professionals

Watch this film to find out more about Mild Cognitive Impairment (MCI). This film supports the work of Dementia United and we encourage you to use this to help raise awareness of joint working around MCI amongst health care, social care and the voluntary sector.

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Mild Cognitive Impairment (MCI) - A Guide for the Public

Watch this film to hear from people living with MCI and professionals about why it is important to identify MCI - funded by the Greater Manchester and Eastern Cheshire Strategic Clinical Network and created in partnership with Age UK Trafford.

End of Life Care

Working together with Greater Manchester Hospices we are developing training on end of life care of those with dementia. This will be targeted at Primary Care Networks in the first instance to support their delivery of the Enhanced Health in Care Homes programme from October 2020. If you are part of a Primary Care Network and would like the opportunity for your multidisciplinary team to attend this free webinar training, please contact lyndsey.kavanagh@nhs.net.

Greater Manchester End of Life Dementia Training Syllabus for Primary Care Networks [PDF]

The syllabus was designed with input from people affected by dementia and professional experts. It also utilises the UCL 4 Rules of Thumb for End of Life Care for People with Dementia.

Carer Decision Aid During COVID and beyond [PDF]

Your friend/relative may become unwell with coronavirus and you might need to make decisions quite quickly about their care. This decision aid is a guide to support you when making decisions. It covers some of the common challenges and decisions you may face. It also gives you information about your options and how to make a decision.

Resources

For people living with dementia and their carers

Young Onset and Rarer Forms of Dementia

FOR HEALTH AND CARE PROFESSIONALS WORKING IN THE FIELD OF DEMENTIA

Delirium

Get involved with Dementia United

Mild Cognitive Impairment (MCI)

End of Life Care

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