Useful national resources: end of life care
Please note these are collated from external organisations. Dementia United is not responsible for the content of the resources listed below:
- Greater Manchester and Eastern Cheshire Strategic Clinical Networks: Palliative care pain and symptom control guidelines for adults: for staff providing generalist palliative care
- What is a personalised advance care planning conversation
- Alzheimer’s Society: End of life care factsheet. https://www.alzheimers.org.uk/sites/default/files/2018-10/531LP End of life care.pdf
- Alzheimer’s Society: Dementia planning ahead for the end of life. https://www.alzheimers.org.uk/get-support/publications-and-factsheets/dementia-together/aug-sept-2021/dementia-planning-ahead-end-life
- Dementia UK: Recognising the later stages of dementia and moving towards end of life care. https://www.dementiauk.org/wp-content/uploads/2022/02/V3-End-of-life_AC_revised_Feb-14_NT_LD_DB_WEB.pdf
- SCIE: End-of-life care and dementia (Multiple resources incl. research & case study activities).https://www.scie.org.uk/dementia/advanced-dementia-and-end-of-life-care/end-of-life-care/
- SCIE: Care home action plan (improving personalisation in care homes). https://www.scie.org.uk/person-centred-care/improving-personalisation-in-care-homes
- Skills for Care: Supporting people in advance stages of dementia. https://www.skillsforcare.org.uk/resources/documents/Developing-your-workforce/Care-topics/Dementia/Supporting-people-in-the-advanced-stages-of-dementia.pdf
- Skills for Care: Best practice case studies from domiciliary care employers developing their workforces to support people with dementia. https://www.skillsforcare.org.uk/resources/documents/Developing-your-workforce/Care-topics/Dementia/Better-domiciliary-care-for-people-with-dementia.pdf
- Pennine Care: Let’s Talk About Death Shall We booklet. Dementia_end_of_life_leaflet.pdf (penninecare.nhs.uk)
- NHS England and NHS Improvement: National Palliative and End of Life Care – EARLY Identification and Personalised Care and Support Planning Toolkit. https://future.nhs.uk/gf2.ti/f/1009474/114307717.1/PDF/-/National_Early_Identification_and_Personalised_Care_Planning_V4.pdf%2029092021.pdf
- Alzheimer’s Society, Marie Cure, UCL and King’s College London: Rules of thumb: End of life care for people with dementia. F427a Rule of thumb dementia guideV7.pdf (yhscn.nhs.uk)
- Marie Curie: Helping professionals care for people with dementia at the end of their lives. https://www.mariecurie.org.uk/blog/dementia-care-toolkit/193535
- NHS England: Advance Care Planning Guide. https://www.england.nhs.uk/wp-content/uploads/2018/04/my-future-wishes-advance-care-planning-for-people-with-dementia.pdf
- TIDE: End of Life Care and Post Bereavement Support – Shifting the Conversation from Difficult to Important. https://future.nhs.uk/gf2.ti/f/1009474/53689893.1/PDF/-/EOLC_shifting%20the%20conversation_Tide.pdf
- Marie Curie and UCL: Eating and Drinking – Information for family and friends as dementia progresses towards the end of life https://www.ucl.ac.uk/psychiatry/sites/psychiatry/files/eating_and_drinking_final.pdf